Patient registries are valuable in helping research studies collect data. Therefore, patients can help advance the clinical understanding of genes and their association with disease by enrolling in any of the relevant registries below. This list is not comprehensive, and there may be registries that are appropriate which are not listed. None of the registries listed on this webpage are affiliated with Myriad®. They are listed here for informational purposes only. If you have any questions regarding privacy of your data before enrolling in a registry, please reach out to the registry.
If you have a registry that you would like listed on this webpage, or if you see a registry listed that is no longer active, please complete the form below to let us know. To have a registry added, the criteria that needs to be met include:
| Registry name | Institution | Website or email address |
| Prospective Registry of Multiplex Testing (PROMPT) | Multiple | http://www.promptstudy.info |
| Hereditary Cancer Center High Risk Registry | Creighton University | http://medschool.creighton.edu/preventivemedicine/ |
| ICARE – Inherited Cancer Registry | Vanderbilt University Medical Center | https://inheritedcancer.net/ |
| Registry name | Institution | Website or email address |
| Prospective Registry of Multiplex Testing (PROMPT) | Multiple | http://www.promptstudy.info |
| Hereditary Cancer Center High Risk Registry | Creighton University | http://medschool.creighton.edu/preventivemedicine/ |
| ICARE – Inherited Cancer Registry | Vanderbilt University Medical Center | https://inheritedcancer.net/ |
| Registry name | Institution | Website or email address |
| Oregon Ovarian Cancer Registry | Oregon Health and Science University | http://www.ohsu.edu/xd/health/services/cancer/getting-treatment/services/ovarian-cancer-registry.cfm |
| Registry name | Institution | Website or email address |
| The David G. Jagelman Inherited Colorectal Cancer Registry | Cleveland Clinic | https://my.clevelandclinic.org/departments/digestive/depts/hereditary-colorectal-neoplasia |
| The Familial Colorectal Cancer Registry MSKCC | Memorial Sloan Kettering Cancer Center | https://www.mskcc.org/cancer-care/types/colon/clinical-trials/hereditary-registry |
| Hereditary Gastrointestinal Cancer Registry/Huntsman Colon Cancer Institute | University of Utah Huntsman Cancer Institute | http://healthcare.utah.edu/huntsmancancerinstitute/patient-care/clinics-and-care-teams/high-risk-cancer-research-clinics-and-studies/hereditary-gastrointestinal-cancer-registry/ |
| UCSF Gastrointestinal Hereditary Cancer Registry | University of California San Francisco | http://gi.ucsf.edu/care/services/cancer.html |
| Sandra Rosenberg Registry for Hereditary and Familial Colon Cancer | Rush University Medical Center | https://www.rush.edu/services/sandra-rosenberg-registry-hereditary-and-familial-colon-cancer |
| Familial Gastrointestinal Cancer Registry | Mount Sinai Hospital | http://www.zanecohencentre.com/gi-cancers/fgicr |
| Vanderbilt Hereditary Colorectal Cancer Registry | Vanderbilt | http://www.vicc.org/hcp/registry/ |
| Oregon Colorectal Cancer Registry | Oregon Health and Science University | https://www.ohsu.edu/xd/health/services/cancer/getting-treatment/services/colon-cancer/registries/index.cfm?DCSext.condition |
| Inherited Colorectal Cancer and Polyposis Registry | Washington University, St Louis | http://www.colorectalregistry.wustl.edu/ |
| Alive and Kickin’ – Lynch Syndrome Registry | Alive and Kickin’ | https://aliveandkickn.org/lynch-syndrome |
| Registries to be added soon |
| Registry name | Institution | Website or email address |
| War On Melanoma – Melanoma Community Registry | Oregon Health and Science University | www.WarOnMelanoma.com |
| Registry name | Institution | Website or email address |
| Early Onset and Familial Gastric Cancer Registry | Memorial Sloan-Kettering Cancer Center | https://www.mskcc.org/cancer-care/clinical-trials/05-118 |
| Registries to be added soon |